Sunday, April 29, 2012

Don't Mess With Mama Bear!

I'm breaking from our usual "what's Frances done this week" post talk about something that has irked me all week.  Stick with me- I may get a little long-winded.  Poor Frances has been through the ringer over the past few months with illnesses, doctor appointments, tests, etc.  Just since 2012 started, Frances has done GI, ER, ophthalmology, ENT, cardiology, neurosurgery, x-rays, ultrasounds, ct scan, and of course multiple trips to the pediatrician.  We are blessed in that we are not dealing with anything life-threatening, but the poor girl needs a break! 

This past Monday Frances had a ct scan with contrast dye done, and she had to go under anesthesia for it.  The results came back totally fine, so no worries there!  I have to say that pretty much all of her medical visits have all been positive experiences so far, but we had a little incident at the hospital Monday that has really taught me the importance of asking questions and being aware of what's going on in the medical setting.  To start off with, one of the nurses asking us 500 questions ended by sticking her head back in the door to ask, "Now does she always hang her tongue out like that?"  Really?????  Maybe the question was important to know about her breathing but surely there's another way to ask!  I hear comments all the time from people who likely know nothing about Down syndrome and likely have good intentions, but people just don't think before they speak.  I'm usually not bothered by any of it, but coming from a nurse, it just rubbed me the wrong way.
All smiles before they started messing with me!
Frances came back from anesthesia recovery mad as a hornet- screaming like most of you have never seen her do before.  The sweet nurses made sure to tell us "oh, she just started crying when we came down the hallway."  Yeah right.  We later hear from the anesthesiologist that she had put up a fight the whole time except when she was asleep.  No big deal, but I was irritated that the nurses had told us otherwise.  It was really hard to get her calmed down and she was refusing to drink anything.  I thought maybe her throat bothered her, but the nurse said they didn't use a breathing tube, just gas.  Incorrect.  Then I kept thinking  Frances just didn't look right.  She was puffy, splotchy, had some petechiae on her cheeks....Mama's know when things aren't right.  The nurse kept telling me "oh its just because she got so mad."  I disagreed.  Then about an hour later, Frances turned bright red from the neck up.  They did, at least, check on that.  After we were home she spiked a fever over 103.  It. Was. A. Rotten. Day.  Thank goodness for our sweet pediatrician who constantly checks on us and really listens to me, because I felt like no one else did that day.
Does she look right to you?
So she likely had some sort of reaction to the combination of medications (anesthesia, contrast dye, etc.).  She also has had an off and on rash for a few weeks so she is just over it all right now!  Frances is scheduled for her next set of tubes in a few weeks, and possibly getting tonsils out too.  Next time will be better! I'm writing about this now for a few reasons.  One being I have been frustrated all week and sharing it is helpful.  Also, just a reminder - ask lots of questions.  Ask them over and over, even if it seems like you are annoying, and if you think something isn't right, don't let someone convince you otherwise.  Trust your gut....then honestly fill out the satisfaction survey they send you in the mail.  As I said before, we have really had nothing but positive experiences and I'm so thankful we live where we have such incredible medical facilities! 

I'll end with a cute picture from our exhausting but fun weekend.  We hit the Autism Walk, Funky Fish Fry, UAB baseball game, and a birthday party all on Saturday!
Its been a long week but I'm all good now!

Sunday, April 22, 2012

Picnickin' and Piano Playin'

Today after church we headed out to Railroad Park with a few friends for some Earth Day Picnic festivities.  There was a huge crowd there and the weather was beautiful (although really windy!).  Frances loves being outside and of course she loves anything that involves food.  Here are a few pictures from our outing:
Having fun with Mary Meadows, and enjoying a rice krispy treat!
Allergies and sunscreen = red puffy eyes
Ahhhh now this is the life!
Nana Sue was there too!
Will recently picked up a piano for us to have at the house.  Frances has always seemed to love music and she had fun trying out the piano for the first time last night.  Thank goodness we have a maestro in the family (that's you, Uncle Richard) who can teach her to play!
Testing out the new piano
Frances had a rough week following Easter, when she got hit with a nasty virus.  She is all better now, but she was feeling really lousy for about a week.  Being held and rocked was about the only thing that calmed her down.  So thankful that week is over and she is back to her old tricks:) 
This girl loves her Daddy!

Monday, April 9, 2012

Big Easter Weekend!

The triplets came to town for Easter, and Meme and Grump's house turned into Baby Central.  It was awesome!  Within about 30 minutes of their arrival Friday morning, we had very quickly taken over the house with baby stuff.  Frances loved being in the middle of it all....except for when we tried to make her take a nap with the babies!  The triplets are growing so fast and they each have such funny little personalities.  Friday night we celebrated Jack's birthday, then on Saturday we met up with some of Sage's friends and their babies and Sage and I went shopping.  Frances also got a haircut over the weekend!  The whole family was at mom and dad's for lunch on Sunday, and we managed to get in some pictures of all the grandchildren.  Then it was time to load the Nichols clan up in the van and they headed back to Mississippi.  We are so blessed to have this big and growing family.  It was definitely a weekend of joy and love, and experiencing God's incredible gifts!

"Praise be to the God and Father of our Lord Jesus Christ! In his great mercy he has given us new birth into a living hope through the resurrection of Jesus Christ from the dead"   
1 Peter 1:3

Frances checking Anna out
Brooks- How cute is this face?!
Frances assisting Irene with tummy time- Irene didn't really think it was funny.
Brooks and Irene wanted to skip naps and enjoy the beautiful weather.
Frances is all about her pointer finger these days.
Sage and Brooks
Haircut time....Grump had to make some adjustments the next day:)
All this for me???  Frances loves candy just like her mama!
Beautiful girl!
Lyndy, Frances, and Kat
First attempt at a picture- not going so well....
Ditch the bonnets, maybe that will help?
Much better! All the cousins: Lyndy, Kat, Frances, Irene, Brooks, & Anna
Just for fun, I had to throw this picture in.  One of my favorite Frances pics from Easter last year.  She was so tiny!

Tuesday, April 3, 2012


Check out my new look!
 That's what Frances is doing these days- stylin' in her new glasses.  Well, that is, when we can actually get her to keep them on.  The eye Dr wants to try her in some glasses for the next 3 months to see if it helps with some eye crossing and other vision things that have been going on.  She is doing well with them so far- as long as we keep her hands busy!